STUDI FENOMENOLOGI PENGALAMAN MERAWAT ANAK DENGAN HIV
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https://doi.org/10.24843/coping.2022.v10.i02.p11
Abstrak
The phenomenon of caring for sick family members is a challenge. Human immunodeficiency virus is a disease that requires handling and support both in prevention, transmission, and treatment. There are still many families who are dishonest in caring for children with HIV. The purpose of this study was to determine the life experiences of families and health workers in caring for children with HIV at Serang Hospital. The research method uses a qualitative research design with phenomenological approach. Participants were taken using purposive sampling. The number of participants involved in 7 families with children with HIV and 6 health workers (2 doctors and 4 nurses). The research instrument is the researcher along with the research members. Data retrieval using interviews with deep interviews. The results of the analysis obtained themes: (1) ignorance of knowing HIV disease when the child is being treated; (2) loss of follow-up related to treatment; (3) barriers to early diagnostic examination; (4) economic demands in the child care. The results of this study can be useful for improving care for children with HIV by increasing public knowledge in collaboration with health workers.
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Referensi
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Indriastuti, N. A. (2015). Faktor-faktor yang memengaruhi pencapaian peran sebagai ibu pada perempuan dengan HIV/AIDS di Yogyakarta. Mutiara Medika, 15(1), 75–83.
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Xu, J. F., Ming, Z. Q., Zhang, Y. Q., Wang, P. C., Jing, J., & Cheng, F. (2017). Family support, discrimination, and quality of life among ART-treated HIV-infected patients: A two-year study in China. Infectious Diseases of Poverty, 6(1), 1–10. https://doi.org/10.1186/s40249-017-0364-5
Astuti, W., & Fitrian, R. (2017). Pengalaman Seksual Pasangan Penderita HIV dalam Mempertahankan Status HIV Negatif. Nursing Practices, 1(2), 32–43.
Atanuriba, G. A., Apiribu, F., Boamah Mensah, A. B., Dzomeku, V. M., Afaya, R. A., Gazari, T., … Amooba, P. A. (2021). Caregivers’ Experiences with Caring for a Child Living with HIV/AIDS: A Qualitative Study in Northern Ghana. Global Pediatric Health, 8. https://doi.org/10.1177/2333794X211003622
Boyse. (2008). Children with Chronic Conditions. Pediatrics Journal.
Chandiwana, N., Sawry, S., Chersich, M., Kachingwe, E., Makhathini, B., & Fairlie, L. (2018). High loss to follow-up of children on antiretroviral treatment in a primary care HIV clinic in Johannesburg, South Africa. Medicine, 97(29).
Friedman. (2014). Buku Ajar Keperawatan Keluarga Riset, Teori & Praktik. Jakarta: EGC.
Gebremichael, M. A., & Gurara, M. K. (2021). Predictors of Loss to Follow-Up among HIV-Infected Adults after Initiation of the First-Line Antiretroviral Therapy at Arba Minch General Hospital, Southern Ethiopia : A 5-Year Retrospective Cohort Study. Hindawi BioMed Research International, 2021. https://doi.org/https://doi.org/10.1155/2021/8659372
Haerati, Andi Asrina, Suriah, F. A. G. (2018). LOSS TO FOLLOW UP PADA ORANG DENGAN HIV DAN AIDS YANG MENERIMA TERAPI ANTIRETROVIRAL DI KABUPATEN BULUKUMBA. Prosiding Seminar Nasional, 1 (September 2014), 326–331.
Hamid. (2011). Asuhan Keperawatan Kesehatan Jiwa dan Teknik Analisis Data. Jakarta: Salemba Medika.
Handayani, L., Ahmad, R. A., & Subronto, Y. W. (2017). Faktor risiko loss to follow up terapi ARV pada pasien HIV. Berita Kedokteran Masyarakat (BKM Journal of Community Medicine and Public Health), 33(4), 173–180.
Indriastuti, N. A. (2015). Faktor-faktor yang memengaruhi pencapaian peran sebagai ibu pada perempuan dengan HIV/AIDS di Yogyakarta. Mutiara Medika, 15(1), 75–83.
Kemenkes RI. (2020). Infodatin HIV AIDS. Kementerian Kesehatan Republik Indonesia, 1–8. Retrieved from https://pusdatin.kemkes.go.id/resources/download/pusdatin/infodatin/infodatin-2020-HIV.pdf
Mugisha, J., Mugisha, J., Kinyanda, E., Kinyanda, E., Osafo, J., Nalukenge, W., & Knizek, B. L. (2020). Health care professionals’ perspectives on barriers to treatment seeking for formal health services among orphan children and adolescents with HIV/AIDS and mental distress in a rural district in central, Uganda. Child and Adolescent Psychiatry and Mental Health, 14(1), 1–10. https://doi.org/10.1186/s13034-020-00332-8
Nurhayati, G. E., Murwasuminar, B. J., Laelasari, L., & Manap, A. (2018). Hambatan Dan Tantangan Orang Tua (Ibu) Pada Saat Melakukan Perawatan Anak Dengan HIV/AIDS (Adha) Yang Mengakses Layanan HIV di Kota Bandung. Jurnal Sehat Masada, 12(2), 123-143.
Osafo, J., Knizek, B. L., Mugisha, J., & Kinyanda, E. (2017). The experiences of caregivers of children living with HIV and AIDS in Uganda : a qualitative study. Globalization and Health, 13(72), 1–13. https://doi.org/10.1186/s12992-017-0294-9
Reed, E., Silverman, J. G., Stein, B., Erausquin, J. T., Biradavolu, M., Rosenberg, A., & Blankenship, K. M. (2013). Motherhood and HIV risk among female sex workers in Andhra Pradesh, India: The need to consider women’s life contexts. AIDS and Behavior, 17(2), 543–550. https://doi.org/10.1007/s10461-012-0249-3
Renani. (2014). Children with Asthma and Their Families’ Viewpoints on Spiritual and Psychological Resources in Adaptation with the Disease. J Relig Health.
Saumu, W. M., Maleche-Obimbo, E., Irimu, G., Kumar, R., Gichuhi, C., & Karau, B. (2019). Predictors of loss to follow-up among children attending HIV clinic in a hospital in rural Kenya. Pan African Medical Journal, 32(1).
Sengayi, M., Dwane, N., Marinda, E., Sipambo, N., Fairlie, L., & Moultrie, H. (2013). Predictors of loss to follow-up among children in the first and second years of antiretroviral treatment in Johannesburg, South Africa. Global health action, 6(1), 19248.
Smeltzer, S. C., Hinkle, J. L., Bare, B. G., & Cheever, K. H. (2010). Textbook of Medical-Surgical Nursing. Lippincott Williams & Wilkins.
Srinatania, D., Sukarya, D., & Lindayani, L. (2020). Gambaran Kepatuhan Minum Obat Arv Pada Anak Dengan Hiv/Aids. Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal), 6(1), 53–58. https://doi.org/10.33755/jkk.v6i1.176
Stolley, K. S., & Glass, J. (2009). HIV/AIDS, Health and medical Issues Today. Greemwood: Pres An Imprint of ABC-CLIO, LLC.
Suryono, A. (2017). Hubungan dukungan keluarga dengan kualitas hidup anak yang menderita penyakit kronik di PKU Muhammadiyah Yogyakarta. Naskah Publikasi.
Susyanty, A. L., Handayani, R. S., & Sugiharti, S. (2017). Keterjangkauan Biaya untuk Mendapatkan Pengobatan pada Anak dengan HIV AIDS dan Infeksi Oportunistik. Media Penelitian Dan Pengembangan Kesehatan, 27(3), 161–168. https://doi.org/10.22435/mpk.v27i3.6773.161-168
UNAIDS DATA. (2020). Retrieved from unaids.org/sites/default/files/media_asset/2020_aids-data-book_en.pdf
WHO. (2010). The World Health Report 2010.
Xu, J. F., Ming, Z. Q., Zhang, Y. Q., Wang, P. C., Jing, J., & Cheng, F. (2017). Family support, discrimination, and quality of life among ART-treated HIV-infected patients: A two-year study in China. Infectious Diseases of Poverty, 6(1), 1–10. https://doi.org/10.1186/s40249-017-0364-5
Diterbitkan
2022-04-29
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ERNAWATI, Eka; MARWIYAH, Nila; RAHMAWATI, Dewi.
STUDI FENOMENOLOGI PENGALAMAN MERAWAT ANAK DENGAN HIV.
Coping: Community of Publishing in Nursing, [S.l.], v. 10, n. 2, p. 193-202, apr. 2022.
ISSN 2715-1980.
Tersedia pada: <http://103.29.196.112/index.php/coping/article/view/84324>. Tanggal Akses: 05 mar. 2026
doi: https://doi.org/10.24843/coping.2022.v10.i02.p11.
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